Ben and I have been contacted by an adult ABI patient who has very kindly agreed to meet us today to speak about his device. He was implanted in Manchester in 2008 following bilateral NF2 tumours and removal of his auditory nerves.
We had so many questions to ask him and his sister and they answered them all, from what is sounds like compared to normal hearing (beeps and bops) to do they get dizzy and how is their balance. Above all we were reassured that given the situation again he would go through with the ABI. I know there is a lot of research saying adults with ABI’s don’t do as well as children so that was aggregate to know that he doesn’t rate the device!
Also this week we tried out a walking frame for Oliver. He seemed to really enjoy it but Ben and I found it quite hard.