11th October 2016 -Spinal Fusion

Oliver went for his spinal fusion surgery on the 11th of October 2016. The surgery was necessary as Oliver has a fused section of spine (between T1 and T6) on one side which was growing more slowly than the normal side. Not only was this causing the spine to curve but it was also causing…

Spinal surgery

Well we finally have a date for Oliver’s latest surgery. He will have fusion surgery at Edinburgh Sick Kids Hospital on 11th October 2016. While we are obviously dreading it, we know that it has to be done because it’s causing Oliver’s heart to be positioned in the wrong place in his chest. Hopefully, he…

2nd August 2015

IMG_2278 Well we’ve had quite a hectic summer culminating in and emergency admission to Edinburgh Sick Kids Hospital for a tonsillectomy and adenoidectomy. Oliver was very ill after this and spent a few days intubated in ICU. His oxygen saturation a over the preceding few months had been ridiculously low and could have resulted in…

Help us raise £20,00 to get back to the John Tracy Clinic

Can you help us to raise £20,000 to get back to The John Tracy Clinic in Los Angeles. This clinic has helped us so much in the past. They not only help Oliver with his communication and social skills, they help Darcey with counselling and siblings classes and Ben and I to learn communication techniques….

14th October 2014 – Kilimanjaro countdown

It’s only 3 more sleeps until daddy climbs Mount Kilimanjaro to raise funds and awareness for Oliver. We’re so proud of him doing this and, if you want to sponsor him, you can do so through our donate button or by clicking this link! Go daddy!! https://fundrazr.com/campaigns/eqEAb

13th July – 2nd Aug 2014 – John Tracy Summer Camp

We have just returned from an amazing three weeks at The John Tracy Clinic in Los Angeles. Oliver has come on so much after attending their 3 week preschool session, words cannot explain how well he has done. His social skills have improved dramatically, he was actually taking part in circle time, copying hand actions,…

1st July 2014 – spine and hearing update

We haven’t posted for a little while because we’ve been so busy with all our appointments! We’ve been travelling to Manchester for Oliver’s mapping and, unfortunately, after our first visit they had to turn off 5 electrodes that we’re stimulating his tongue instead of his hearing!! He can still hear over the remaining 5 electrodes…

8th May 2014 – mapping session

We travelled to Manchester for Oliver’s first mapping session in the UK today. Oliver was so tired from all the travelling that he fell asleep for the whole session which turned out for the best. His sleeping meant that the team were able to test all of Oliver’s electrodes for any non auditory stimulation. It…

15th March 2014 – Meeting with an adult ABI patient

Ben and I have been contacted by an adult ABI patient who has very kindly agreed to meet us today to speak about his device. He was implanted in Manchester in 2008 following bilateral NF2 tumours and removal of his auditory nerves. We had so many questions to ask him and his sister and they…