Oliver's Diary

11th October 2016 -Spinal Fusion

Oliver went for his spinal fusion surgery on the 11th of October 2016. The surgery was necessary as Oliver has a fused section of spine (between T1 and T6) on one side which was growing more slowly than the normal side. Not only was this causing the spine to curve but it was also causing…

Spinal surgery

Well we finally have a date for Oliver’s latest surgery. He will have fusion surgery at Edinburgh Sick Kids Hospital on 11th October 2016. While we are obviously dreading it, we know that it has to be done because it’s causing Oliver’s heart to be positioned in the wrong place in his chest. Hopefully, he…

2nd August 2015

IMG_2278 Well we’ve had quite a hectic summer culminating in and emergency admission to Edinburgh Sick Kids Hospital for a tonsillectomy and adenoidectomy. Oliver was very ill after this and spent a few days intubated in ICU. His oxygen saturation a over the preceding few months had been ridiculously low and could have resulted in…

Help us raise £20,00 to get back to the John Tracy Clinic

Can you help us to raise £20,000 to get back to The John Tracy Clinic in Los Angeles. This clinic has helped us so much in the past. They not only help Oliver with his communication and social skills, they help Darcey with counselling and siblings classes and Ben and I to learn communication techniques….

14th October 2014 – Kilimanjaro countdown

It’s only 3 more sleeps until daddy climbs Mount Kilimanjaro to raise funds and awareness for Oliver. We’re so proud of him doing this and, if you want to sponsor him, you can do so through our donate button or by clicking this link! Go daddy!! https://fundrazr.com/campaigns/eqEAb